Sadie’s Story
Sadie talks to us today about her sweet little girl, Navy! She was born with a condition called, Arthrogryposis. When Sadie and her husband first got the diagnosis while Navy was in utero, they didn't know what their future would look like. They were told that she could be born with 2 extremities affected, or she might not be able to survive after birth. There was no way to tell until she was born. Navy was born and was able to breath on her on, and was such a little miracle! She was affected in her arms and legs, but they were so grateful for life with their beautiful baby girl. Sadie told us all about casting appointments, procedures, surgeries, therapy and how her little Navy has thrived in the world she has been thrown into. We are so inspired by Navy, her family, and can't wait to see what this little girl can accomplish!
Chelsie’s Story
On this week's episode our guest Chelsie, shares with us a little insight into what it is like being the mother of a child with LGS. Her sweet daughter Finnlie has anywhere from 30-50 seizures a day, and that number has dropped tremendously from where it used to be. Chelsie shared with us the ups and downs that Finnlie and her family face on a day to day basis - the beautiful parts along with the hard parts. We are so proud of Chels, and the courage that it took for her to come on this podcast and to share a tiny bit of their lives. We hope you enjoy this episode.
XOXO Whit + Kels