Kendra’s Story

OHHH our friend Kendra. We had all the feels while talking to her in this episode. She lost her sweet daughter Makenzie at 4 months old to SMARD. (Spinal muscular atrophy with respiratory distress) is an extremely rare type of spinal muscular atrophy. According to google, infants diagnosed with SMARD usually don't live to see their 2nd birthday. When Kendra and her husband realized the cause of this disease, they did everything they could to prevent it, while still growing their family. Then the unthinkable happened. Their new baby Brooks suddenly had the same signs and symptoms. He was quickly diagnosed with the same disease as his angel sister and again they lost another baby. Our hearts were broken listening to Kendra tell her story, and we have so much love for her, and for her voice in the SMARD community.
XOXO - Whit + Kels

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Samantha’s Story

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Megan’s Story